Sunday, October 9, 2011

here is another area of information.


http://www.floridaepilepsy.org/

What is EpilepsyU?

EpilepsyU.com is a brand new, active online resource that not only offers information and epilepsy education, but is a Community for contacts, socialization, support, events, and much more.

EpilepsyU is uniquely designed and can be customized to meet YOUR personal needs! EpilepsyU offers access to educational materials, social networking, group forums and much more!

EpilepsyU is “U!” You are an integral part of this UNIQUE experience, and will help us build it every day by registering, participating and sharing this site with your friends. Register now and become part of a NEW network – unlike anything else on the web today! This site offers it’s own membership registration system or you can simply login with your existing Facebook™ account. Go on, Learn. Explore. Communicate.

Epilepsy foundation groups


This is a great group to talk and ask questions. It is nice to find people with the same issues. They have been discussing meds, weight, etc. I have really enjoyed talking with these people. I don't really talk with folks around my area but I never really did. Look and enjoy

This group is for anyone who just needs to talk about all there problems that they have with Epilepsy. We all need to talk sometimes and express how we feel, which makes us sometimes feel better.

Website: http://epilepsyfoundation.ning.com/group/everydayproblemswithepilepsy
Members: 266

Saturday, October 8, 2011

Help out the Kids


borrowed this in from Living in a Brainstorm. it is a great story.


Help Out the Kids!

The Epilepsy Foundation of Colorado has entered the Albertson's Community Partners Challenge to win a $7,500 grant for their Jason Fleishman Summer Camp. The money will go toward scholarships for kids with epilepsy who can't afford to go. This past summer, I went up to the YMCA at Estes Park for a week to help out at camp. It was amazing. Should I ever get a job, I'd like to save up vacation days to go again. The kids have all different kinds of seizures, varying in severity and frequency, and range from very high functioning to needing a little help. All of them are ages 10-17 and are brave, strong people who deal every day with more than kids should. A lot of them have trouble fitting in at school, with their friends, with a lot of people. But not at camp. I sat with them making friendship bracelets, colorful knots of embroidery thread taped to our knees, and listened to them talk. Over and over, even from the older boys - who are not generally known for sharing feelings - that the Jason Fleishman Camp is the only place where they feel completely comfortable and accepted. The thing that makes them different is suddenly the thing that makes them fit in.

So, from October 1st through 15th, you can help these kids by going to www.albertsonscpchallenge.com and voting. All you need to do it enter your email address, which they will not sell, so you won't get any spam. Enter in EFCO's ID# 0015, and hit Vote. You can vote up to five times a day, but even one helps.

Thank you so, so much.

Hello

This is Veronique. I have decided to enroll in the war against Epilepsy thru education. I have seen some wonderful blogs and videos. It is amazing what people can do with a computer. I am going to post the links. One of the biggest part of my information is the use of hormones against seizures. This is working for me. My neurologist do not believe it I have had more than one not believe it. They are not the ones having the seizures. I was able to find a great newsletter in British Columbia and they have a large amount of information. A lot of us have more than one problem. Time to treat the body and not just each disease.